We started off August with Rowan's second broken arm. This I am sure will come with lots of medical bills, but in the short term it's come with all sorts of emotions and sadness to navigate my poor boy through. He's missing baseball desperately and about once a day he comes to me crying telling me how he can't do ANYTHING because of his arm. This is mostly true. He can't play rough, ride a bike or a scooter, climb on the pirate ship, play catch, practice sliding, go swimming, run through sprinklers, and the list goes on an on. This struggle of course effects everyone in the family since now all the boys can't really do those things.
Just about the time we'd gotten Rowan somewhat pulled together the universe decided to traumatize his sweet little soul once more Monday night. The boys were somehow fully asleep by nine o'clock at night, which never happens, when our phones alarm with a tornado warning, quickly followed by the tornado sirens going off. Zach and I dragged our sleeping babies out of bed tired and into the storm shelter, with their blankets and stuffed animals in toe, and me with a diaper bag full of snacks. Zane woke up ready for the action, ready to be a hero, Rowan woke up a ball of emotions. This fits their personalities to a T. We in no way had been paying attention to the weather, because as I had just told Rowan not two days before, there aren't tornadoes in August.
Turns out there are tornadoes in August, approximately three miles from my house. We were all huddled in our tiny shelter, everyone shaking and scared, but keeping it together. After a few minutes Zach went up to check the TV to see where the storm was. This prompted the boys, mainly sweet emotional Rowan, to scream bloody murder. He screamed daddy as though his dad was walking out into an actual tornado, never to be seen again. I had to physically restrain him from running after him. I also had shaking, crying two year old clinging to me for dear life, and Zane joined in on the panic as well. This screaming continued until Zach got back to tell us all was clear and we come out. Rowan then spent the next hour holding me, physically shaking, telling me
"I was so scared mommy, I tried to pray, but I was too scared." God bless his little soul. He ended up sleeping with me for part of that night so he could calm down.
School was cancelled on Tuesday and we tried to make a fun day of it. I took them out to lunch and ice cream. We watched a movie, we played, and we cuddled a lot as I was trying to actively rewrite the narrative of this particular traumatizing childhood experience. I am not sure how that worked out since the following day brought an even more traumatizing experience for everyone.
The boys went back to school Wednesday after a long late start morning full of cuddles and reliving the traumatizing events of the previous night. When they got home Zane asked to play outside. I distinctly remember saying, "it's so hot why don't you just play inside and rest before baseball practice." This worked for maybe twenty minutes then out they went. They were correct in their assessment that it wasn't really that hot and I joined them outside enjoying the shade of our new pergola. I saw Zane standing on the tallest board, at the top of the pirate ship, one hand over his head, holding a stick that he's hitting one of the sails with. "Zane, get down you're going to fall and break your neck." Not five minutes later Rowan calmly comes and tells me "Zane fell off the pirate ship." And by off the pirate ship I don't mean the place where humans should be standing, I mean on top of the boards that are there to keep you from falling.
Let me just say I am and will always remain a neuro nurse at heart. I spent five years as a neuro nurse seeing children with traumatic brain injuries from things much less drastic than a ten foot fall. Random freak accidents where kids ended up paralyzed or worse. When these traumatic events happen in my life, and they happen frequently now days, there is a moment where I take a deep breath and flip the internal switch in my brain from mother to nurse. This split second moment consists of me as mother having a full panic attack as all the horrible things that may have happened to my baby flashes through my mind. It's fast, but it's real. Then I change hats and begin calmly assessing the situation, starting with the most important question in my book, "Did you hit your head?"
Zane claims he doesn't remember how he fell or what he hit, but that he was sitting on top of the pirate ship not standing when he fell. This is key since he's almost five feet tall and that would've made the fall that much worse. Rowan says he saw him hit is arm and his head. Initial assessment wasn't too bad, a huge bruise on the underside of his left arm, I'm not sure what he fell on, but it left quite the mark.. I wasn't concerned that his arm may be broken because Zane has the industrial strength bones, which he desperately needs with his solid lack of fear and common sense. He also complained of the side of his head hurting which means he did hit his head from a fall greater than his own height. If you're wondering when to be concerned about falls, it's when they are greater than the person's height, onto a hard surface, and when they hit their head, check, check, check in this case.
I decided to wait and see how he did. I figured at least he had a concussion at worst he had a bleed or a skull fracture. I vetoed baseball practice, which didn't seem like a good idea after a probable concussion and possible worse brain injuries yet to be determined. Zane was subdued while Zach and I were trying hard not be furious at him for doing things we've told him not to do REPEATEDLY. I thought we were going to be ok until I got out of the shower and Zach told me that Zane had thrown up. Zane followed that up with saying that he was seeing spots and his neck hurt. Do you want to know what the line in the sand, as far as when to go to the ER with a head injury is, if they throw up, have vision changes, or are complaining of neck pain. If their pupils have changed you're generally too late, it's typically a very late sign of internal bleeding. Check, check, check, again!
So off I headed back to the ER for the second time in the past month. I called the coordinator at the hospital on my way in. She informed me the ER was completely full, great! Zane and I spent three hours in the ER waiting room even though we were checked in as a "trauma" and he was placed in a c-collar the moment we arrived. I could tell Zane felt bad about the whole thing and we both were exhausted when we arrived. I was not prepared for a seven hour ER ordeal, but that's what it ended up being. After three hours in the waiting room we spent another four in an actual room, the one right next door to where he'd been last Feb. for when we were there for his heart.
Once we got back into his room it became clear that he definitely has some PTSD from his time in the hospital. All the alarms and constant blood pressures being taken stressed him out. He's never been that way before, but this is the first situation he's been in with the monitors and all the machines since he was in patient. Making this worse is the fact that he does have a bit of an arrhythmia so the EKG monitor would alarm every five minutes, as a constant reminder that yes he is also a heart patient, in case we forgot. He had an xray, a CT scan, and bought himself a c-collar after saying he felt tenderness on his upper back/neck when they pushed around on it. This most likely means there is some soft tissue/muscle strain there which could effectively make his neck more susceptible to injury. You definitely want your cervical spine fully stable since that's where things like breathing take place.
We didn't leave the hospital until four in the morning. Zane finally fell asleep for a little bit around three. I didn't sleep, I just sat and tried to wrap my mind around our crazy life. I've said it a lot that the bar for me being upset, worried, or flustered is really high. This is the beauty of being a heart mom. When you start off parenting with an open heart surgery everything else if manageable. This remains true. The scenario of taking my kid into the ER with a potential brain/spinal injury I thought would be my worst nightmare when I was pregnant with Zane. Turns out it's not my worst nightmare. We've survived the worst nightmare, twice. This was bad, this was scary, this was in no way fun, but it's all manageable. Zane and I stayed home Thursday and after Zach went to work he came and slept in my bed because he was scared. I just kept finding myself singing the Hamilton line "the fact that you're alive is a miracle, to stay alive, that would be enough," all day. This sentiment rings so true. Miracles happened to keep you alive kid, please don't kill yourself doing something stupid. At one point he told me he "probably wouldn't climb back up their again," and I almost killed him myself. I know his frontal lobe isn't developed, but we've got to work on having some common sense. I loved on him all day yesterday and Grandma came to give him hugs and pats as well. He's feeling much better and went to school today in his c-collar, pretty embarrassed by it all. He was getting a math button of some kind at the assembly and had me ask his teacher to just give it to him in class so he wouldn't have to walk up in front of the whole school.
Yes, Zane has the best attitude of anyone I know, always with a smile on his face, even in a c-collar, working on 4 hours of sleep. The ER doctor told him he'd have to wear the collar for two weeks. Zane's response, "two weeks isn't that bad." My response, that's insane I'm getting in to see a neurosurgeon on Tuesday. We'll see how it plays out.
Our neighbor and Zane's Cub Scout den leader brought him snacks. He's nothing if not well loved.
I would really like to not have to bath all of my children every night. The bath time routine last night was just absolutely ridiculous. Zane has a second c-collar that is just foam that we have to change him into before he showers, then change it back to the padded one when he's finished. I also have to bath him because he'll for sure fall down trying to bend over to wash his body while wearing a c-collar. Rowan has to have his arm covered and helped be bathed as well. Thatcher put on a slap bracelet at one point yesterday and said, "Oh no Mamma, I hurt my arm." I should probably wrap him in bubble wrap before he breaks both of his legs. I am beginning to question if maybe the crazy helicopter, over protective mothers might be on to something. Their children maybe aren't as adventurous as mine, but I am confident that they aren't spending hours in the ER, multiple times a month. Zach and I have had the conversation if we should be more protective of them. I'm not sure I know where I land on that debate.We can do hard things, but frankly at this point I am tired of doing hard things. I am tired of ending up in my bed with a sick, broken child all the time. I'm tired of waiting on medical bills that I know are coming. I'm tired of meeting my maximum out of pocket every year. The emotions in my house from all these traumatizing events is too much to manage at times. Most evening I end up on the couch smothered by boys, all whose hugs sacks are empty and are in need of attention. All of this on top of back to school is exhausting. We were going to spend Labor Day weekend at the lake, I think I'd rather spending in bed, or on the couch covered with boys. I'm going to hold them tight and not let them out of my sight in hopes of keeping them safe for a few days.


























































