First Blog

I had originally planned to start blogging during my pregnancy. I was going to chronicle all my adventures as a cute pregnant lady. Upon becoming pregnant it became obvious that, A. I wasn't that cute, and B. a blog about my pregnancy would basically be updates on how crummy I felt and the numerous different places I had vomited. This seemed awfully negative so I decided I would wait to start blogging until my perfect little baby boy arrived. Then my blog would be filled with musings on my adorable baby boy and our adventures as a new little family. As it turns out things didn't quite work out that way. Over the past couple weeks, as we have adjusted to the new normal that is our life, I have given starting a blog a lot of thought. In the end I decided that it would be a good outlet for me and a way for the many people who are sending prayers our way to be kept up to date on Zane's condition.

On that note, today we went to Zane's second, of what I am sure will be many, cardiologist appointments. At our fist appointment we were told we would be seeing the doctor every two weeks. Which means they have to "fit us in" because our doctor is booked until the end of August. So after four days of me perfecting my "pushy mother" voice with his secretaries we got an appointment. Today when we got there we found out that our doctor was never made aware of said appointment, so we would be seeing a different cardiologist. I tried to not like the guy but he turned out to be very nice. But we will have to work on Dr. Murphy actually being at our next appointment.

Anyway, Zane had an echo cardiogram and an EKG done today. I got a little nervous when he screamed bloody murder while they were putting on the EKG leads but he calmed down and slept through both tests after that. The tests showed that the narrowing of his pulmonary artery has worsened over the past two weeks, which was what they expected would happen. For now this isn't causing any visible problems with our little guy. He is still nice and rosy and the oxygen saturation of his blood was great. However, as this worsens he may start looking a little purple at which point we will start discussing surgery. In somewhat good news we found out his narrowing is only at the level of the pulmonary valve which means an easier repair in the end if all stays the same. Overall the visit was good. Zach and I have been able to process the situation over the past couple weeks so we were able to ask intelligent questions and look at the echo images to see for ourselves what we were dealing with.

It is still a daily struggle to stay out of the dark place and enjoy our adorable little man without thinking about what lies ahead. We are still adjusting to the new normal and at times everyday I morn what I had pictured this time would be like. It is hard to change our mind set but we are getting there. We have been comforted greatly by the love, thoughts, and prayers of so many of you. We cannot thank you enough, keep them coming we need all the help we can get!