Monday, February 16, 2015

Birthday Week: Conversations with Ro

When we brought Rowan home from the hospital one of the first things little almost three year old Zane asked us was, "can he talk?" This question has been a constant over the past two years. Rowan would reach a milestone, rolling over, sitting up, walking, whatever it was, and Zane would proclaim "He can talk??" Zane would then be devastated to find out that no, he hadn't mastered that step just yet.

As we enter Rowan's birthday week Rowan is talking up a storm. I feel like vocabulary is like a switch that gets turned on with little kids, one day they have a few words, you can barely understand, and the next they can say practically anything. It is so fun to hear his little voice chattering away, to be fair lots of it is still incomprehensible, but he's making huge strides everyday.

So here are some of Rowan's favorite things to talk about and some of the phrases that we hear all the time around our house.

"Right dare"- He points to all sorts of things and tells you they are 'right there,' he always knows where his sippy cup is, 'right dare,' or where he wants you to put things, or where he wants you to go. Yes, he can be a bossy little boy.

Note his new woof woof shirt!

"Yedow"- Yellow is the one color that Rowan consistently can identify. Hence, it is his favorite color and a word he sometimes uses to express joy. I often hear squeals of delighted "yeddow" coming from the back seat when we are driving.

"Woof woof"- Rowan's word for all things dog, but again just one of his go to words to throw out in conversation with himself or others. He can spot dogs or pictures of dogs from a mile away when we are out and about, prompting screams of woof woof in the middle of stores. The birthday week decorations have brought this joy to a whole new level.


"I did it!" - This is one phrase he can say clear as a bell and with such a sense of pride. He can do all sorts of things by himself now and he always proclaims it.

"I do it"- Don't you dare try to help Rowan do anything, or this will be screamed at you in frustration. All things, including things completely impossible for him to do, he wants to do by himself. This often ends in huge fits, but sometimes ends in me stepping back and letting him do things on his own, even if that means taking twice as long (think putting his clothes on). 

"Mamma do it" - This is his newest phrase, used to try to get people to do things for him, because he is incredibly lazy. This is most commonly used when I tell him to go get something and his response, "mamma do it," "daddy do it," "bobo do it?" It rarely works, but nice try kid.

"Mamma, Daddy, Bobo" - He says the family list repeatedly, usually when he is highly emotional and doesn't actually know what he wants. Bobo is his go to comforter when he has gotten in trouble, very cute.

"I wanna go" - This is said on repeat from the moment I put his shoes on until we actually get loaded in the car. At our house that process can take quite awhile. The whole time Rowan will be dressed, jacket on, hood up, little hands in his pockets, following me around, "I wanna go," "I ready" "Car?," on repeat.


"Choo Choo Jammies!!!!" - This is quite possibly my favorite Rowan phrase. It is not said as a request, but more of a celebration. He walks around showing off his Thomas jammies, saying this. It is freakishly adorable. Getting the choo choo jammies off in the morning is a struggle that can end in a tearful 'choo choo jammies' which is horribly pathetic.

Yes, Choo Choo Jammies are worn at all times of the day and he has two pair of the above version. S

"Uh Oh" - Said when bad things happen, he spills something, he drops something, or just amongst his random list of things he says when he is talking to himself. This phrase became popular on our recent road trip to SEMO, every time he would turn off his DVD player you'd hear a little string of Uh Ohs coming from the backseat.

Other favorites include, "share Bobo," "my turn," "dinner time," "Nooo," "hot," "cuddle me," "mine," "Mickey Mouse," "I cook," "I help," "orange," and his ever so quite, whispered, sleepy "boy" that he says during song time at night to request his lullaby,  Little Boy, to be sung for the tenth time!

When Rowan is speaking he will not be ignored. If you don't immediately do whatever he has requested, or thoroughly acknowledge whatever he has said, he will continue saying it, louder, but most importantly closer and closer to your face. Many nights I have Rowan, with his little hands on my cheeks, face up against mine, saying "I want Milk" while basically kissing me. This becomes a real problem when we seriously don't understand what he is saying, he will continue until we figure it out. Zane is a pretty good Rowan translate which is very helpful.

I love all that he has to say, his facial expressions, his determination to get his point across, and his melt your heart, sweet little boy voice. Listening to the conversations that he and Rowan have are priceless, about random things, and rarely making any sense, but they are having a blast. Zane finds Rowan's being able to talk hysterical and I am loving being able to finally communicate with him somewhat. It is a long road to get to this point and this time next year I won't be able to keep him quite! 

 Over the glasses stare, trying to get me to go get his ball for him. "Mamma do it!"

"My phone"

Sunday, February 15, 2015

Rowan's Year in Pictures

Today begins Rowan's second birthday week. Lets begin with a year in review with twelve adorable pictures of my Ro baby!
 
February 2014
March 2014

April 2014

May 2014

June 2014

July 2014

August 2014

September 2014

October 2014

November 2014

 -Binki Smile!

December 2014

January 2015
 -Choo Choo Shirt!!!

February 2015

Saturday, February 14, 2015

Happy CHD Awareness Day

This is a week full of hearts. Heart candy, heart decorations, heart cards, and stuffed animals with hearts on them. So it's only fitting that this would be congenital heart defect awareness week. For every heart I see I think of all the little kiddos with broken hearts, some repaired, some unrepairable, all bearing the scars of being 1 in 110 babies born with a congenital heart defect, making it the number one birth defect in the world. Some of those families get a diagnosis prior to birth, prepped for the worst case scenario that could happen once their children arrive. Some, like me, have their visions of a perfectly healthy baby crushed soon after birth, their world turned upside down by their children's diagnosis. Some of these babies won't need surgery, most will, and some won't live to see their first birthday, let alone grow up to have full, healthy lives. The scope of all that CHD covers is vast from simple murmurs that one can live with, to multiple surgeries, or life ending scenarios. Every child born with CHD will need life long medical follow up and care. All will have their story forever changed by their diagnosis. Most will have a visible scar that represents all that they went through. Scars there for all to see that they are survivors. 

October 2010



The parents of children born with CHD don't have any visible scars, but they are also survivors. Their hearts were also broken. They have spent hours begging and pleading with God to please let them change places with their tiny baby who they have to hand over to a stranger, who will take them to have their heart stopped. They have cried tears that only other parents who have seen their child face death can fully understand. Their story has been changed and they get the profound honor of having given birth to their heros. They never take a second of their child's life for granted because they know full well that every time their child's heart beats it is a miracle.

I get to count myself among this blessed group of parents whose child has not only survived a CHD diagnosis, but is thriving. The more I immerse myself in the CHD community the more I truly realize how unbelievable Zane's story is. Every single step of the way, from birth, to today has gone absolutely as perfectly as possible. That is rarely the case. No complications, no bumps in the road, just the one, completely successful surgery is beyond amazing. Over the past month I have read story after story of TOF babies who required multiple surgeries, multiple trips to the cath lab, and weeks/months in the hospital. All things that could have happened to our sweet heart warrior, but by the grace of God our battle was much shorter.



 Going home with a little banana just in time for Halloween on the morning of day five.

I have also read lots of tributes to heart angels, children born with a CHD that didn't make it and have earned their wings. Congenital Heart Defects are the leading cause of infant death around the world. Thousands of families each year face the unfathomable reality of loosing a child. CHD kills more children each year than all childhood cancers combined. Little is known about the causes, sometimes there is a genetic factor and sometimes you just happen to be the unlucky one in a hundred births.

 Donate

So during this week of hearts I celebrated the life of my heart warrior, one of close to two million CHD survivors in the United States. I wore red, I ran a 5K for Mended Little Hearts with the proceeds going to bravery bags for families in the hospital. I tweeted facts & figures about CHD, and Zane rocked his scar. I received emails from strangers who had seen that I had TOF baby and wanted to ask if I needed help, wanted to talk, or just needed to vent. I became part of large community all fighting for CHD awareness and praying for better treatments for those who are still fighting their CHD battles. The scars of my journey were on the forefront of my mind, I prayed for those who are walking now, and I counted my blessings that our story is so miraculous. I looked back at previous blog posts about Zane's surgery and was in ahh at how far we have come and how much we have over come. This week I celebrated every miraculous birthday, all the tears, every doctor's appointment, every difficult conversation, everything that we've been through and tried to raise awareness for all the other heart warriors out there as well.

Happy CHD Awarness Day from my heart warrior!!

First birthday, rocking his scar proudly. This apparently would become a very fitting tradition.

Second birthday

Third birthday


Fourth birthday

Tuesday, February 10, 2015

Ten on Tuesday

1. This week is CHD awareness week and we have been wearing our red here all week, for our very own heart warrior. I have completed my 5K virtual Roar N Run race, with all profits going to Mended Little Hearts so they can send bravery bags to families who are in the hospital when their kids are having surgery. Many thanks to the friends and family who have joined in on the run! I have had a few people contact me asking how my TOF baby is doing and have been reminded yet again how miracles every step of Zane's journey was. Only having one surgery is beyond the best case scenario. Truly a TET baby rock star.

 Daddy and Zane starting CHD Awareness week off right!
 Yesterday, I wore my actual CHD awareness shirt (Note the big TOF in the middle)  while watching this kids run around crazy at the park.
Took this after finishing my race this morning. I could barely move, but my little heart warrior had endless energy that I could not keep up with, at all. 

2. While at the park yesterday I attempted to take pictures of my boys. The lady who usually does our photos is pregnant and moving so I don't feel like I need professional pictures that bad. I have a good camera, but it is next to impossible to get these two to look at the camera, at the same time, with anything near a real smile. Zane busted out a completely new and strange smile yesterday.





3. This week Zane has taken a renewed interest in bird watching. This I think is partly to do with finding a new pair of binoculars and partly because we refilled the feeders this weekend. They are already empty again though, so not sure I can afford to feed these greedy birds.

 Obviously can't be a nature expert without the adventure hat. This is his drawing of the trees by the pond. He drew everything he could see, including cars and the mailbox. We researched all the birds that we saw, including the ducks on the lake. Lots of fun!

4. Rowan's birthday is creeping up on my extremely quickly and I am in no way prepared. So far I have ordered a few paper plates with dogs and them and set out to take more pictures of Ro with my good camera. Oh and bought yet another stuffed dog to give him for his bday. 

 Ro at two!

5. The past few days have been gorgeous so the boys and I have spent a large portion of today and yesterday at the park. Yesterday might have been a new record for length of time at a park, but it was just to gorgeous to get in the car. Rowan is at that terrifying age where he can do lots of things at the park, but there are still lots of ways he could kill himself, which means I get to be part of the climbing fun again. So I took my camera with me and caught some good action shorts of them playing as well. Today Zane face planted from the monkey bars and has a scraped up face/hands, so our trip wasn't quite as fun as yesterdays.


 Two year old death trap, the open space where they can plummet to their death.
 Sliding back and forth on this thing was a big hit and the shredded tire made for a soft landing.
Monkey boy

6. We made a trip to the candy store today to get some Valentine's candy and because Zane told me "candy would me feel better" after he face planted. I love 42nd street candy here. It's just down the street from my brother's shop and it is so fun to walk around, checking out all the fancy candy. We got lots of good treats I really don't need. 

7. Rowan and Zane have gotten into a pretty good grove of playing together, minus some difficulty taking turns. There are moments they are completely entertained without my help, which is amazing. This week's biggest joy so far has been two huge empty boxes in the living room. One use to house all the baby toys, which Rowan of course is obsessed with, now that he isn't a baby. Each got their own box and the fun began. 


Rowan had an utter meltdown yesterday after I told him he could not take this huge baby music thing into the car with him. Oh the joys of two.

8. This weekend the work on the garage continued and I think we have made great headway. Zach also made us a board to measure the boys on that we can take with us to our many houses. I wish we had done this sooner, it was so easy, and so needed. Rowan was in a particularly chill mode this weekend, content with sitting back in his chair watching all the action. 



9. This evening I was devastated by the news that Jon Stewart will be leaving the Daily Show soon. Does that make me old?? I've watched that show "to ever" to quote Zane. Where will I get all my news??? End of an era. Random fact, but so be it.

10. Last, but not least, check out how I started my day the other day. This pure love fest between my two boys. Rowan could not stop hugging his "bobo." Zane was too sleepy to make him stop and it was just the cutest darn thing I have ever seen. I love sleepy morning when the boys want to snuggle. 

"my bobo"